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Last updated 26 November 2000.
If you wish to contribute information to this page, please send me an email . I receive many requests from patients who wish to obtain information about ICD support groups . Unfortunately, I must rely upon outside sources to provide this type of information. Please send the location of the support group (hospital, phone number, Dr.'s office, etc.) and the contact person's name. 
Advanced Tachycardia Therapy.

ICD SUPPORT GROUPS

ICD Support Groups Outside the U.S.

HOSPITAL

CONTACT PERSON

PHONE #

cruises for cardiac patients
indications for icd
ALABAMA
Baptist Montclair
Birmingham, AL
Check out the web site at:
http://www.cvapc.com
CALIFORNIA
Huntington Mem. Hospital
Pasadena, CA
Susan Smith, RN
Good Samaritan Hospital
Los Angeles, CA

Beverly Firth, RN, MN
bfirth

O'Connor Hospital
San Jose, California
Linda Gordon, RN
garlind
2105 Forest Avenue
ICD Suport Group meets the third Tuesday of every month from 2:30 to 4:00 pm in Cafeteria Dining rooms A&B.
Light refreshment, No charge

x2120
Regional Cardiac Arrhythmia Center
Scripps Memorial Hospital
La Jolla (San Diego), CA
Organizer: Sherie Whiting, RN,MN
Director: Steven L. Higgins, MD
email: EPdoc

fax
Meets Quarterly
Eureka Senior Resource Center
1910 California St.
Eureka, California
The Eureka, CA ICD Support group has changed its meeting day from Wednesday to Tuesday.  We meet on the 'Third Tuesday of the month.'  This starts in the month of December.
Also, we have adopted the name: BeatNiks.
EMail: bsully
UCLA Medical Center
10833 Le Conte Ave.
Room 47-123 CHS
Los Angeles CA
Coordinator: Jeanine Lee, NP
EP Co-Directors: Zenaida Feliciano, MD & Noel Boyle, MD, PhD

The meetings are three times a year, and UCLA patients also receive a newsletter announcing the next meeting.  The meetings are usually on Wednesday evenings and dinner is provided. 

Patients can contact me at the number below for further information or the ICD clinic may also be contacted at regarding meetings and getting on the mailing list for the newsletter.

Email: jlee
Phone:
Fax:
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FLORIDA
Bayfront Med. Center
St. Petersburg, FL
Sherry Bucko
Bayfront ICD Support group meets second week of every other month in the BMC Steen Conference Center Sun Coast Medical Building
2nd floor conference room
email: NurseBucko
Florida Hospital
Orlando, FL
http://www.flhosp.org 407/897-1575
Holy Cross Hospital
Ft. Lauderdale, FL
South Florida ICD Support Group (since 1989)
Meets at Holy Cross Hospital, Ft. Lauderdale
Contact: Linda Vardeman RN
Director: Richard M. Luceri, M.D.(Florida Arrhythmia Consultants)
Meets on the first Monday of alternate months (5pm-7pm): June, Aug, etc.
The Watson Clinic, LLP
Lakeland , Florida
Debra McKinney, RN.
The ICD group meets quarterly on Tuesday at 5:00 pm in the 1st floor Medical Library. The date is not predetermined. Please call for date. Light refreshments.
No charge.
Morton Plant Mease
Dunedin, FL
jmakal
John Makal CVT II
ICD group meets the third thursday of each month from 7pm to 9pm. For info please email John Makal or call ext 27208.

University Community
Tampa, FL
Cindi Sullivan
GEORGIA
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Emory Health Care
Atlanta, GA

Nancy Romieko
Peggy Wade


Meets Quarterly

St. Joseph's Hospital
Atlanta, GA

Susan Hornecker RN
shornecker

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ILLINOIS
Good Samaritan Hospital
Downers Grove, IL
 
Northwestern Mem. Hospital
Chicago, IL
 

Carle Clinic
Urbana, IL
"Live Wires" ICD Support Group
         Coordinators: Marilyn A. Prasun R.N., M.S.
   & Julie Purcell R.N.
   Meetings are held: @ Carle Foundation
   Hospital, with a educational session followed by
   a social time of sharing.

mprasun
Illinois Masonic Medical Center
836 W. Wellington
Chicago, IL   60056
Catherine_Dunnington

INDIANA    
St. Vincent Hospital
Indianapolis, IN
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Contact:   Patti Vaughn, RN
Electrophysiology Lab
8333 Naab Rd.
Indianapolis, IN  46260
email:    PLVaughn

Our clinical director is Dr. Eric Prystowsky.  Our support group meets in April and October, and we are approaching our 10th anniversary.


MAINE
York Hospital
15 Hospital Drive
York, Maine 03909

Meets the third Thursday of each month and alters the location between York Hospital and The Heart Institute in Newington, NH. The odd months it is held in Newington and the even months in York. We start at 1 PM and try to get out at 2 PM. We offer a wide range of topics over the months. York Hospital has an ICD implant and follow-up clinic where we currently follow 57 patients with a wide variety of ICD devices.

Lona Davis, RN is the primary contact person at York Hospital.

Our electrophysiologists are Lawrence J. Petrovich and David Cunningham. Dr. L.J.Petrovich has been implanting ICD's since 1992. Dr. D. Cunningham just joined the practice from Lahey Clinic in Burlington, MA. Both doctors are in the Seacoast Cardiology Ass. group that covers York, Maine, Portsmouth, Newington and Dover, NH.


We offerattendance to any support group meetings and frequently have people with ICD's that are visiting the area or followed by other clinics attending, as well as family members.

MASSACHUSETTS
Boston, MA Longwood Medical Area ICD Support Group
a collaborative effort between Brigham and Women's Hospital and Beth Israel Deaconess Medical Center in Boston, MA.
Quarterly meetings (evening) with a speaker followed by anforum for discussion.
Dinner served, complimentary parking, no fee
Spring Dinner Cruise on Boston Harbor
contact Julie Shea, RN, MS for details.
JBSHEA
Fall River, MA

An ICD support group known as RHYTHM BOX BUDDIES has been in operation for approximately 10 years.   The group meets monthly at either
Charlton Memorial Hospital or St. Anne's Hospital in Fall River, MA.
Organizer and contact person is Anita Soares RN, Cardiology Associates,  829
SoMain St., Fall River, MA.

MICHIGAN
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Providence Heart Institute
Southfield, MI
Keith Puitz EP tech
First meeting June 24, 1998
Meets every two months
The coordinator is
Christian Machado, MD
William Beaumont
Royal Oak, MI
Linda Griffin
Spectrum Health
1840 Wealthy St SE
Grand Rapids, MI  49506
Jackie Oliai, RN, MSN  (contact person)
The Group meets the second Tuesday of every month from 7:00 pm - 9:00 pm. It is free andto all ICD members and their families. 

Butterworth
Grand Rapids, MI
Cindy Price
McLaren
Flint, MI
Carol Higgins
U of M Hospital
Ann Arbor, MI
Theresa Davidson
St. Joseph's
Ann Arbor, MI
Sue Honoway
Borgess
Kalamazoo, MI
Donna Thurn
Michigan Central
Lansing, MI
Denise Grimes
St. John
Detroit, MI
Julie Fresard
Northern Michicgan Hospital Jennifer Jones
MINNESOTA
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Minneapolis Heart Institute
Arrhythmic Clinic
Minneapolis, MN
milst001
(adult electrophysiology)
dunnigan

(pediatric electrophysiology)

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NEBRASKA
The Cardiac Center of Creighton University
Omaha, NE
"The Jumpstarters"
Vince Huebert
vhuebert
Timothy Ryan, RN
Manager, Arrhythmia Services
The Cardiac Center of Creighton University

trryan
 
NEW JERSEY
Newark Beth Israel Medical Center contact:  Donna Neglia, RN
email:  donneg
Morristown Memorial Hospital contact:  Steve Winters, MD

ask for Dr. Winter's Office
Valley Hospital
Ridgewood, NJ

Jonathan Steinberg, MD
Electrophysiologist
The Live Wires (ICD support group) will meet:
February 24, 1999   6-9 p.m.
"On the Terrace" at Valley Hospital
Sponsor:  Ventritex
Topic:  Food for the Heart and Soul
Refreshments will be served. 

For reservations call:  after 3 pm.

NEW HAMPSHIRE
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Dartmouth Hitchcock Medical Center
Lebanon, NH
ICD Support Group
meets three times per year and discusses a variety of heart related topics.
contact person: Carol Zalinger, RN
Email: Carol.Zalinger
NEW YORK
St. Peter's Hospital
315 South Manning Blvd.
Albany, NY 12208
ICD Wellness Support Group
Facilitator: Linda Wagenknecht RN
Co-Facilitator: Stacey Simeon RN BSN
Meets quarterly. Provide information on a variety of cardiac related issues at each meeting. Annual ICD Picnic.

EMail: LindaWagen
1-800-heart-76
University Hospital at Stony Brook
Long Island
Hello! My name is Terry Leonard and I am one of two coordinators for our support group. We run a support group for our patients quarterly at 14 Research Way, in Technology Park, Stony Brook, New York. It's held on Monday eves 7-9pm, with tech support from Medtronics
and Guidant. We also provide education. Please contact me or Virginia Dignam.
OHIO
Akron General Medical Center
Akron, Ohio
The contact person is Judy LaBarba .  We meet every other month on the second Monday from 6:30-8:30 P.M.
Ohio State University Medical Center
Columbus, OH
The location varies, but is held quarterly.
Contact The Arrhythmia Device Service at
OSU Medical Center
Janet Collins, RN
Toledo
Toledo, OH
Linda Hutchenson
St. Vincent's
Toledo, OH
Joyce Morris
ONTARIO (Canada)
Hamilton Health Science Corp.
237 Barton St.
Hamilton, ON L8L 2X2

Organizer:  Ceri Gibbs, RN
ICD nurse
    

(905) 527-4322
ext. 4887
OREGON
Portland, Oregon
Providence & St. Vincent Hospitals

Polly Luthro, RN
  polly_luthro

Site alternates, call for info.

PENNSYLVANIA
Lancaster General Hospital
Lancaster, Pennsylvania
Cherie Tannehill, Electrophysiology Services
email CTTanneh

The group is called "The Zapper Club" and we usually meet about 4 times a year, offering either breakfast or lunch, a "get to know one another" session, then we try to get speakers in from different walks of life, that may affect our folks, i.e., pharmaceutical companies, ICD and pacemaker vendors, people that discuss healthy eating and exercise, etc..
The Lankenau Hospital
100 Lancaster Avenue
Wynnewood, PA  19096
ICD Support Group
Contact People include:
Mary Alice Roth, R.N.

Carolyn Aldrich

Diane Nachamkin, R.N.

The group includes patients from three cardiology/EP groups that work at The Lankenau Hospital but anyone is more than welcome to join us.
 
Hahnemann University Hospital
M. S. 470

230 N. Broad Street
Philadelphia, PA
Contact Person:  Desiree Soto, RN
Clinical Cardiac Electrophysiology
        


Newsletter Contact:
Maureen & Stan Kochanek
Village Greenes
11 Lavender Court
Marlton, NJ
(856)  810-9437
Please Note:  We submit a newletter 3 times a year, have an active support group, and we organize annual ICD cruises where an EP doctor and nurse accompany us.   PLEASE LET US KNOW IF YOU'RE INTERESTED IN BEING PLACED ON OUR MAILING LIST!!!
Altoona Hospital
6th Floor Meeting Rooms
620 Howard Avenue
Altoona, PA  16602
Kim Koehle, RN
kak263
chuck.seighman
Reading Hosp. & Medical Center
Reading, PA
I run an ICD lecture series for patients and a member of their family or friend.  We meet quarterly in The Reading Hopsital and Medical Center Education Rooms.  I am the EP nurse coordinator for Cardiology Associates of
West Reading.  My name is Robin White, RN. .  My
e-mail address at home is rmossw
York Hospital
York, Pennsylvania
Contact:  Ann Moehlman, R.N.
e-mail:  cd_amoehlman

ICD support group meets quarterly.

Call for dates and times.
The 2nd Chance Support Group
Associated Cardiologists
Mechanicsburg, PA
Electrophysiology Nurse: Jennifer Conrad, RN, BSN
David Scher, M.D.

Our group meets quarterly. We usually meet in the afternoon with light refreshments and we invite people to speak about subjects that affect patients with ICDs.
We send out a newsletter every three months.
SOUTH CAROLINA
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Greenville Hospital System
Greenville, SC
Debby Greenlaw, NP-C
1st Thursday
@Life Center
Medical University of SC
171 Ashley Ave
Charleston, South Carolina
c/o Cardiology
Dr. Nancee Sneed RN PHD
College of Nursing
This is an adult group. They meet monthy on Mondays prior to clinic.
The patient group contact person is
Gay Pardee
sneedn   

803/792-0683

Medical University of SC
171 Ashley Ave
Charleston, South Carolina
A new group for Pediatrics
Sherry Taylor RN, BSN, Ped Cardiology
TENNESSEE
Methodist Hospital
Memphis, TN

Linda Porterfield, PhD

TEXAS
Baylor Hospital
Dallas, TX

JoAnn McKethan, R.N.
Pacemaker EP Lab
Baylor University Medical Center
No e-mail or web address as yet.

WASHINGTON
Longview, Washington Polly Luthro, RN
polly_luthro 

Location varies for info, contact  Polly
Deaconess Medical Center
Spokane, WA
Contact: Gayle Terry, RN

They meet several times a year, have various speakers and an annual Christmas party.
WISCONSIN
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INSTITUTE FOR CARDIAC RHYTHMS
Aurora HealthCare
St. Luke's Physician Office Building
2801 West Kinnickinnic River Parkway #430
Milwaukee, Wisconsin
Email ahcheart


FAX
The Marshfield Clinic
Madison, WI
"New Rhythm Heart Club."
This support group meets several times per year, usually quarterly, and has a gala picnic usually in late September.  This year it will be in Marathon Park in Wausau, Wisconsin.  Please contact Cheryl Bores, RN concerning questions at the Marshfield Clinic or contact Peter N. Smith, MD, FACC, Cardiac Electrophysiologist, Marshfield Clinic, Clinical Assistant Professor of Medicine, University of Wisconsin Medical School-Madison.
SMITHPN
For AOL members:
naojeca
Just a reminder of ICD Support Chat Sun. night at 9 PM EDT.
You can click on this link to get to room
ICD Support
Or, click on "People"
     click on "Find a Chat"
     click on "Enter a Private Chat"
     type ICD SUPPORT then click on go....
Hope to see you there Sunday night. Remember... 9 - 10 PM EST

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